Tag Archives: SMA

May the 4th Be with You!

This past week the DAWS charity debuted their 2nd annual May the 4th be with You virtual race. The medal this year is the Yavin medal showcased at the end of Star Wars episode IV and it looks pretty cool! Here is a picture of the mock-up.

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We worked to get my blog readers a discount for the virtual race. All you need to do is register for the race on Active.com and when you get to the final “Review Cart & Check Out“ screen you can enter the coupon code in all capital letters. The coupon code is NERFHERDER. Feel free to copy and paste it so you get the spelling correct!

The virtual race needs to be completed in the month of May and you can run, walk, roll, or swim a distance of your choosing whether it’s a single mile or 26.2 miles! The DAWS group would love for you to post a picture of yourself at the end of your virtual race on the DAWS Facebook page!

The funds raised will help find a cure for and raise awareness of Spinal Muscular Atrophy. If you are unfamiliar with this genetic disease then all you need to know is that it is the #1 genetic killer of children under 2 years of age and that there is currently no cure or even a treatment. It is a terminal and degenerative disease that causes weakness and wasting of the voluntary muscles in infants and children. 1 in 6000 children are born with SMA.

Here’s what you get!

  1. A little motivation to run, walk, roll, or swim a distance of your choosing between May 1 – 30th, 2015.
  2. A cool medal!
  3. The satisfaction of knowing that you helped find a cure or treatment for Spinal Muscular Atrophy (SMA).

Now get out there and register you scruffy looking NERFHERDER!! Okay…maybe not “scruffy looking.”

Happy Training!
Brian

It’s all for charity…

Last week someone (Matthew Thomas) over at Team DAWS, the charity dedicated to ridding the planet of the horrible genetic disease known as Spinal Muscular Atrophy or SMA for short, came up with the crazy idea of challenging myself and a friend of mine (Mitch Brannen) to a little fundraiser for DAWS to raise some cash for a good cause.

The Challenge:

This is a very simple event.

Assuming a certain threshold of fundraising is met Mitch and I will dress up and run as Anna and Elsa (From Frozen…but you knew that) during the Walt Disney World Marathon weekend if people donated money.

After the fundraising goals are met, we will be dressed in full costumes that are being designed including a matching tutu or skirt. But who could forget complimenting makeup and a full wig to ensure authenticity…jeesh.

Donate money today and see us run around Walt Disney World in full regalia.  You never know what surprises may be in store.

What are the minimum donations for the two of us to run?

  • At the $500 total donation level, we will run the 5K in full costume.
  • At the $700 total donation level, we will run the 10K in full costume.
  • At the $1000 total donation level, we will run the Half Marathon in full costume.

When does the race take place?

  • Walt Disney World Marathon weekend is January 8-11, 2015

How do you know we ran in costume?”

  • Pictures will be taken along the way and posts on all of our social media including a Go-Pro video of the race!

Do you get a tax receipt?

  • Yes, 100% of your donation will be tax deductible and a receipt will come from DAWS.  

Upping the Ante: …but wait, there’s more…

If we raise $2000 in total donations, I have reluctantly agreed to shave my legs for the event…how do I get myself into these things? I keep remembering it’s all for a good cause.

Wait, it gets better!  Again at the same $2000 total donation level, Mitch will shave his head! No joke, we have video of him saying he would and you can see it here on my Facebook page!

Something for YOU the donor!

For every $25 you donate, you will be entered into a drawing for a free pair of new running shoes.  Donations must be made by November 30, 2014.  The drawing will be held on December 1, 2014.  Emails will be sent out to receive information on Brand, Style, Size, and Shipping Address.  Brooks, Asics, Nike, Saucony, and New Balance are all available.

I didn’t realize training for Dopey would make me so…well, you know.  Uh, happy to help out a good cause!

Happy Training!

Brian